Everyday People Matter

DISABILITY BENEFITS FOR RARE INTESTINAL SYNDROME

| Oct 29, 2018 | Compassionate allowance, Compassionate Allowances Program, Social Security Administration (SSA)

The Social Security Administration (SSA) recently added Megacystis Microcolon Intestinal Hypoperistalsis Syndrome to conditions covered under its Compassionate Allowances program. Megacystis Syndrome is a severe condition that impairs the functioning of the bladder and intestines. This syndrome mimics a physical obstruction of the intestine, causing partially digested food material to be blocked inside the intestine. This can cause symptoms that include vomiting and severe abdominal swelling. Bladder dysfunction can also cause impairment in urinary function.

This is a relatively rare condition, and the prognosis for the condition is not very good. The condition is strongly associated with impaired digestion, and therefore, malnutrition is a common consequence of the condition. This, in turn, leads to a lower life expectancy for those suffering from this condition. Survival of the patient over the long term will depend on intravenous (IV) feedings or parenteral nutrition, accompanied by urinary catheterization or diversion. Long-term use of parenteral nutrition, however, is associated with liver problems, leading to further complications. There is currently no complete cure for this syndrome.

If your loved one has been diagnosed with Megacystis Syndrome, contact Lisa Siegel, Georgia Disability Attorney, about filing a claim for disability benefits.